As a user of this website, you have the right to know how we protect personal information that we receive from you. You also have certain responsibilities.
Personal information basically means any information that can be used to identify who you are or the person whom the information concerns.
This website is not intended for use by individuals who have not reached the age of legal majority in their country. Specifically, that is the age at which a person is recognized by law to be an adult and responsible for any legal obligations created by his or her actions.
Quintiles may receive personal information through direct user input and Quintiles also automatically receives information about how you use our website through “cookies” and web logs.
This policy applies to all information received through the website, both automatically and through direct user input. We receive this information in several ways, which are described below.
Registration is not required for use of this website. Anyone can visit the website, read our content, and request further information about how to participate in the registry. Any person who wishes to participate in the registry is asked to supply us with their contact and location information such as name, telephone number, country and email address.
We forward this information to a coordinating center who will contact the person directly about their participation in the registry. The coordinating center will ask for medical information from the person who wishes to participate and for their permission to contact their doctor to collect further information during registry participation.
Any person who does not wish to participate in the registry but who provides an email address through this website for the purpose of being contacted about a clinical research study of similar interest in the future may receive a communication through the following Quintiles' patient community website, www.ClinicalResearch.com.
All information provided by users is stored in a secure Quintiles database for the duration of the registry. Please see sections below about the ways in which Quintiles protects personal information we receive from users.
Quintiles uses standard Web logs that record basic data about people who visit our websites.
The following information is contained in these logs:
We do not normally seek to identify individuals from Web logs. However, Web logs may be used to identify an individual who we have reason to suspect tried to damage our website or use it in an unauthorized way. If we have reason to believe that there has been a violation of computer security or related laws, we may share our Web logs with law enforcement agencies.
A cookie is a piece of data or a file that a website can send to your Internet browser which may then store it on your computer. Cookies store information such as the pages you visited, the website features you used, and the amount of time you visited a particular webpage. They are also a means of keeping track of a user's preferences during a visit to a website. For example, users expect the application to "remember" their searches so that this information does not have to be entered again for each search. In order to provide persistence of such search criteria, Quintiles stores a unique identifier in a “temporary” or “session” cookie that only exists during the browser’s session with the website. When a new search is started, the identifier can be extracted from the session cookie and used to request detailed search information for that user from our database.
Our cookies do not find or search for personal information about you and do not link to or record any personally identifiable information about you.
In addition, visitors clicking through to this website from either Google or Yahoo! Search engine sponsored Ads will have a cookie placed on their computer for 30 days. This cookie allows Google and Yahoo!, along with Quintiles, to measure the effectiveness of their search engine advertising.
No cookies are used to track an identifiable individual's movement through the website or on the Internet. They are only used to enhance the usability of the site.
The following cookies are used on our website:
You always have the right to refuse the storage of cookies on your computer, or to disable and/or delete cookies at any time. It is important that you understand that if you block or otherwise reject our cookies, you will not be able to use certain of the website's essential features. We suggest that you accept cookies because they allow you to get the most out of your website experience, and to take advantage of some of the website’s essential features. By clicking through the website, we understand this means you have accepted our cookies.
This website does not use third-party cookies.
For more information about cookies, and to see what cookies have been set on your computer and how to manage and delete them, visit www.allaboutcookies.org.
It is possible that we may need to disclose personally identifiable information and personal health information in response to a search warrant, subpoena, or court order. This is a possibility that could confront any record keeper. Disclosures may also be made to protect our legal rights, to protect the security or integrity of our website, to take precautions against liability, or during emergencies if physical safety is believed to be at risk. These types of disclosures are unlikely, but they are possible and so we describe them here.
Quintiles combines and uses non-personal information (aggregated data) from our Web logs and the registry questionnaire to study how our site is being used. We will periodically analyze this aggregated data and use what we learn to make improvements to our website. In addition, we may share this aggregated data (which does not contain any information which can identify an individual) with our clinical research partners to assist them in better designing their websites or clinical trials.
Any person may request to access, correct or delete personal information about them that is entered into the website which is inaccurate or incomplete at any time by emailing Quintiles at firstname.lastname@example.org. We will respond to these requests by email within ten (10) business days. Any registry-related or other clinical research study emails that you have agreed to receive and decide you no longer want to receive, can be stopped by you clicking on the ‘unsubscribe’ link at the bottom of the email, or you can contact us at email@example.com. When you choose to unsubscribe, your registration for the registry’s communication program will be cancelled and you will no longer be able to use your profile to access or receive any information or services. Participants can remain enrolled in the registry after unsubscribing from the communication program.
Like all responsible websites, Quintiles maintains backup files as a protection against natural disasters, equipment failures, or other disruptions. Backup files protect you and us because they lessen the risk of loss of valuable data. Removing a record from our principal files does not remove that record from any of the backup systems. It may take up to six months before all information in a backup record is completely erased through the normal recycling of backup files. In the meantime, as long as backup records exist, they receive the same privacy and security protections as our other records.
Processing personal information in a secure manner is essential to our business and for your protection as a user. Maintaining a secure network and server system is in the best interests of our users and our research partners. Quintiles processes and stores personally identifiable information using industry standard physical, technical, and administrative safeguards to secure such personal information against foreseeable risks such as unauthorized use, access, disclosure, destruction, and modification. Such security safeguards include use of encryption, password protection and Quintiles user authenticated access rights. While we will use reasonable efforts to create a secure, safe and reliable Website, the confidentiality of any communication or material transmitted to or from the Website over the Internet cannot be guaranteed.
Quintiles will respond to your comments or concerns within ten (10) business days from the time your inquiry is received.
Our Website may contain links to other websites. You should carefully review the privacy policies and practices of other websites, as we cannot control or be responsible for their privacy policies or practices. For links to other Quintiles web properties, please review those privacy terms as well as they may differ from those on this website.
Should you have other questions or concerns about these privacy policies, please contact us at firstname.lastname@example.org.